Katie Prentiss | The Slow Goodbye: Mother Loss with Frontotemporal Dementia

This week, I sit down with Katie Prentiss, a filmmaker, actress, and caregiver who transformed her most profound loss into a powerful creative mission. Katie shares her raw and inspiring journey of caring for her mother through frontotemporal dementia (FTD), a challenging form of dementia that impacts personality and communication far differently than traditional memory-loss conditions.

At the age of 62, Katie's mother, Maggie, passed away from FTD. Through our conversation, we follow Maggie's transition from caregiver to actress and the filmmaking of her debut film, "Wake Up Maggie," hoping to raise awareness about dementia and caregiving.  

Katie beautifully describes grief as a "slow goodbye." She shares transformative perspectives, saying that grief doesn't have to have the final word and that facing fear can become a pathway to clarity and purpose. And, my favorite: the sun is always shining above the clouds, even when we can't see it. 

Katie has had to learn how to embrace life fully, knowing the genetic uncertainty of FTD, following the diagnosis of another family member. But she's already learned how creative expression is a healing outlet and the importance of viewing midlife as an unraveling. 

Key Takeaways:

• Understanding the unique challenges of frontotemporal dementia.
• The emotional landscape of caregiving for a parent with a progressive illness.
• How grief can be a catalyst for personal transformation.
• The power of creative expression in processing loss.

RESOURCES:

• Movie | "Wake Up Maggie"
• IMDb
• IG | Wake Up Maggie

CONNECT WITH KATIE:

• Website
• IG
• FB
• YouTube

Transcript

Victoria: Hello. Hello. Welcome to Grieving Voices. Today, my guest is Katie Prentiss. She is the mother of four who was running a successful photography business when her mother was diagnosed with frontal temporal dementia, and she became her full time caregiver. Seeing firsthand how short life truly can be, Katie embarked on a mid life career pivot into acting, Katie's second career began on the fast track by landing the first role She auditioned for in a feature film. Since that amazing opportunity, she added writer, director, and producer to her growing creative resume with the creation of her first award winning short film front porches. Acting has been a life changing occupation for Katie, allowing her to dive more deeply into the stories of others with empathy and understanding. Katie was has written a feature length film called Wakeup Meggie, a coming of age film written as a love letter to caregivers raising Dementia Awareness. Wake up Maggie is currently in preproduction and is being created by a female led production team in film crew. Katie has been featured on remember me, second act actors and more. Thank you so much for being my guests today.

Victoria: And thank you for sharing me, sharing an aspect of grief that hasn't been talked about. I might have had one other guest who spoke on dementia, but not the frontal lobe dementia, which tends to my own understanding just because someone within my community was diagnosed very young in early fifties. Yeah. And so I believe it tends to develop at a younger age. Is that correct?

Katie: That is correct. It is the most common form of dementia under the age of sixty five.

Victoria: And so how old was your mom? Well, first of all, let's was her name?

Katie: Maggie Maggie Hanson? Yeah. Okay. Yeah. My mom

Victoria: was when she was diagnosed then.

Katie: Yeah. My mom was sixty two when we officially got the diagnosis. The tricky thing with front or temporal dementia, FTD is that it can often take an average of three and a half years to get an accurate diagnosis. So often people are showing symptoms like early signs without the family knowing or without anyone knowing what it is or what's going on. So I look back and think she definitely have symptoms like in her fifties.
For sure.

Victoria: Can you share what some of those things that were that you noticed as a family?

Katie: Sure. Well, I should say that frontotemporal dementia definitely affects someone's personality. It's less of a memory type of dementia, and it's more of like personality, compulsion control. For my mom, in particular, it was speech, like language. She had primary progressive aphasias that she lost her ability to to communicate. But early on, it was my mom definitely had some shifts in personality, but we we also had a lot of life stuff happened with her. She had a massive car wreck when I was in college. She my parents went through a divorce when right about within those few years. So there was a lot of circumstantial change in her life, and it was easy to rationalize everything we saw as, oh, this is just mom now that she lives alone. Like, no one's telling her to, like, stop obsessively recycling things. You know? Like, my mom would have just recycling containers stacked up really high. She also, like, was compulsively order like, ordering and clothing online, like, way more than one person could use. She was definitely felt victim to, like, some scams. Like, she signed up for, like, a phone and alarm system in her home. She definitely, like, had some color saying that they wanted to marry her and she fell into this like scam relationship where she sent someone money. But the biggest clue for us was that she started having delusions. And at first, the delusions felt somewhat based in reality, like, very explainable for us. Like, so she said, oh, there is a man and a son in my backyard. And I'm like, well, who? But, you know, in your rational mind, you're thinking, oh, there's probably like a child that that got away from their parents or something and they just went in the backyard and then left. But the delusions started getting more extreme and less realistic. So we knew that something was up at that point.

Victoria: And you're also a mother of four.

Katie: Yeah.

Victoria: So and and I'm I'm also curious if you have siblings because I know you you became her caregiver No. But were your children young? Yeah. That was all that?

Katie: Yeah. It was a journey. So I am the middle child of three. I have an older brother and a younger sister, and they're both wonderful humans like involved. And my extended my family all lived in Georgia at this point and my personal family was living in Oregon and we still are. When this was going on, again, like, there were signs and things going on with mom that we'd be like, that's crazy. Like, she got lost going home. That's that's wild. Like but then once her delusions or her visions of things that she saw or felt were happening became more crazy. Like, she gave a story about a man and a woman who climbed up onto her roof and dug a hole in her roof. Like, she really believed they were, like, going into her attic through her roof. And it was so sad because I just want, like, it just sounds like she's scared to live alone. Like, she thinks, like, everyone's coming to her house. But but anyways, at that point, I talked to my sister and I said, I feel like maybe something's wrong with her meds or like something's off. Like, she's just sharing some crazy stories. And we decided my sister took her to a psychiatrist. To see if there was something some sort of answer they could give us. And the psychiatrist appointment, they basically said, okay, your mom has a delusional disorder. She cannot drive and she cannot live alone. Like starting now. And so we were just like, wait, what? All of us had young kids at this point in our thirties. So my sister being closer in location to my mom. I mean, we were both like, well, she can come with us. It's great. Like, in a way, it was like, well, mom's really helpful to have around and, you know, she's a grandma and, like, she'll it is kinda nice to have an extra set of adult hands. And so my sister and I kinda joked about, like, I'll take her. No. I'll take her. And then she ended up moving in with my sister and her family.
And this was, like, late fall of that year. And my I remember saying to my sister, like, let's just get through the holidays, like, just have mom for an extended visit through the holidays, and then we can talk about what we wanna do, like, in a more permanent way. But they they settled in with mom. She lived there almost three years with them. If I if I do the math right, I think it was right around three and she was living there her symptoms and and disease was progressing and she was getting more tricky to manage. I wasn't, you know, in the weeds with them. They were handling so much stuff like, you know, moving her out of her house, selling her house eventually, like, all of those logistics of caring for someone. And then they got to their end of feeling able to maintain her care needs And at that point, I felt like I can't tolerate having my mom go into a nursing home in Georgia, like across the country from me. So I felt like I wanted her to come live with us and talked with my husband and we made the decision to make we're out to Oregon. And so mom lived here her last two and a half, almost three years of her life with us. So she lived with us in our home for about less than a year and then we had to put her into a nursing home and then a memory care home to be able to handle her needs because it was so advanced. So it was a journey. It was a long journey of trying to figure out how to care for her well. In those years.

Victoria: I think that's probably I mean, I I've just seen it. Mhmm. And so and working I worked in a nursing home, had a memory care, but it is and it can be a very long disease.

Katie: Yeah.

Victoria: And I think that is probably one of would you say that create one of the aspects of it that creates a lot of complicated feelings

Katie: Absolutely. Absolutely because it's like you're mourning your person that's right in front of you. You know that they're on their decline and that death is going to come for them through this it's usually secondary causes through this case, which is super frustrating. But I remember feeling really afraid of how long mom might live with this. Because you just you start to project out and envision the future, and it's it's this, like, rapid decline of them losing well, for us, it was all her personality, all her ability to talk. She became, like, The only way I can describe it is like it would be like a severely autistic person where the ability to communicate is just gone and you're like, know that they're in there, but you want to be able to reach in and have some sort of semblance of interaction with them, found myself envious of people with Alzheimer's because I thought, yeah, they're repeating their story and they don't remember you, but, like, at least they can talk to you. Like, I felt like I just would have given anything to talk to her. To just, like, hear her say something or tell me the same story or, you know, let's let's, you know, have that conversation about who I am not to, like, diminish anyone else's suffering or pain with that. But it is very complicated. It's complicated and that you don't want it to last a really long time. It's complicated that you feel like you're grieving them while they're still there in front of you. I called it the slow goodbye. I know people call it the long goodbye. But yeah, it's just it's yeah. It's just a a difficult walk for sure.

Victoria: How did you explain this to your kids? I mean, because you're a caregiver to children too Yeah. Managing their emotions. Yeah. And bringing a parent into the home, I imagine has a different impact on your marriage too.
And Absolutely. A lot of layers.

Katie: Yeah. Absolutely. I mean, our kids I would say, I'm trying to remember exactly how old they were. I think our oldest was, like, maybe just started middle school and then our youngest was in kindergarten, first grade. I can't remember.
And I would say for the youngest, it was, like, easy because I found him to be the easiest to bring around mom because he would just hug her and, you know, bop away and then come back and hug her again and just like how children can be so present. And and and what is and not, you know, given to, like, the fear, the imagination of what could be. And then the odor we get, the more we live in those spaces of not being present and you know, constantly fearing the worst and stuff. But my older kids I mean, it's it's funny because I think I was in such crisis management mode. I don't know if I did a very good job of explaining anything to them. But I was trying to do my best to model love and care and acceptance like this is what we do. We take care of family. We love the person in front of us. Even though they're difficult, but I probably was naive in what I assumed they were absorbing. It's so easy to assume kids aren't. Absorbing as much and they always are. They're so much smarter than we give them credit for. Mister Rogers was so good at that. Right? Like acknowledging that in children. But I remember my kids would have, like, writing assignments and they'd they'd bring them home and it would be, like, a poem and it would be about my mom, about Mimi living with us. And I thought, oh my gosh, wow. They're so deeply processing. So I think that they I definitely felt my children's attention and care toward me. Is their mom watching me, like, be in this grief? And we just did our very best to, like, support mom, but also, like, give our family time in nurture. And that was the hardest challenge is, like, doing both, like, having just our family time and not feeling guilty about that. And then also trying to take care of mom. So it was a lot like having her in our home. Her needs were really even in the very beginning of her moving in.
Her needs were probably more advanced in what we could handle and we tried. So what did you learn about grief or know about grief?

Victoria: I mean, because you had experienced your parents' divorce Mhmm. And But had grief been a topic that was talked about growing up? And how do you feel how how do you feel this experience has changed? How you look at grief now? And how you parent.

Katie: Yeah. I grief. Wow. I don't know. I definitely had a taste of grief with the divorce for sure that such I remember just feeling like, wow, that really, like, shifted my identity in a way that, like it's like everything I've known myself to be and known myself to be a part of down feels like fragmented. And Even in that, I notice, like, oh, people who have been through it, get it, and know that it's hard. Whereas grief is so tricky, like, when you haven't experienced a like grief, it's harder to enter in with people's suffering or pain or hold space for that because you just feel like I think, especially, okay, going back to the divorce, I think it's such commonplace almost and in our culture that people are like, oh, sorry. You know, it's kinda like, oh, that's hard. Okay. Sorry. And whereas I was, like, processing this whole, like, identity and how do I deal with all of this stuff? I think the thing with mom I you know, that was the most obviously, it's the most profound grief I've ever been through in my life. I think when I was in it, I felt very isolated from people really understanding what it was like because so like we even talked about earlier in this podcast, I think so many people understand Alzheimer's or some type of dementia, but I felt so young and so confused by mom's behaviors in the way she was exhibiting symptoms. I felt misunderstood in a lot of ways I remember, periodically, I would post something on social media and share, like, a couple sentences about losing her as a person and dementia sucks. And then I would find someone whose loved one also had a t d or who were going through something similar and I remember feeling like, wow, why does this feel so helpful even though it changes nothing? It just feels so helpful to know that you're actually not alone in the exact scenario you're in. So I learned that in that in those moments, I learned that sharing our story is incredibly powerful and that even though we can feel so isolated and alone, that can really help with with some of those feelings. And then, obviously, with the grief, like, the deeper grief of of her actual death and that loss, I learned so much. I learned that we all experience our grief so differently from each other. And I think the really interesting thing is that even in a sibling group or even when you're grieving the exact same person that you feel like you know in a very similar or same ish way, you will process it differently. And I notice very early on that sometimes the people you think you'll be able to have, like, intimacy and grieving with, you might not be able to have that. And I also notice how easy it is to compare your grief to other people, vice versa, and how unhelpful that is. So if someone's sobbing and you feel like stone cold like dried up, it's easy for one to think the other is silly or whatever, but it's not helpful. So that was those lessons were incredibly profound in the early stages of losing mom of, like, oh, we're all gonna do this differently. It does nothing to compare. It does nothing to serve us to compare or contrast. And, you know, you may not be able to share your grief with people who you think you might be able to share your grief with. The other thing that I realized that I think a lot of people probably know of experience grief is that it shows up when it wants to show up. It's a non invited guest. I I'm always like, this is now my lifelong companion. Don't really wanna walk with her, but I will be. And it's something that I just have to let, like, show up and move through. And and yeah. And just it does change through years, but it's not that loss is always there. The loss of a person that you love or the loss of a dream that you had or yeah, that loss of future that you expected. It's just it's like always gonna be there. So and I'm still learning. I I think the other lesson now I'm like eight years out of losing my mom. And I always I think a lot about how it doesn't have to end with grief. Like, grief doesn't get to have the final word. And that's the other thing I've learned. It's like, yes. The impact is profound. It might stop you in your tracks. You might have to spend a lot of years, like, what I call cocooning. Like, cocoon and heal and contract. And, like, take that comfort and space however you can survive, but know that it doesn't have to be the final say that, like, the clouds can lift and I always say the sun is always shining above the clouds just because you can't see it doesn't mean it's not there. And that brings me so much comfort just knowing like I might be like walking around and just gray clouds feeling so thick. Like, I'll never see anything else besides that, but the sun is shining. And if you've ever taken a flight, you know what that feels like to fly through the clouds and then it's glorious.
Right? It's like the sky is just lit up or you know, maybe you get a sunrise or a sunset in there, see other beautiful things, but like that's existing all the time on a different plane and is accessible to us, at least in our minds.

Victoria: Beautiful.

Katie: Thank you.

Victoria: What was the thing do you think that helped you the most to create a forward momentum of healing?

Katie: I think for me, losing mom at a young age made me realize the contrast is like, yes, death can happen at any time. We don't know. Like, we can't predict our future, that makes me want to, like, live. It doesn't serve anyone for us to just curl up in a ball and be dead ourselves, you know. And so for me, it's like, well, okay.
Now I know so profoundly that life is short. And I want to, like, live big. I want to live as big as I can and love as big as I can. And I feel like just that thought alone helps me. Just like I think it's probably inevitable to compare your life to, like, especially when you lose a parent, when you lose a parent at a certain age, you start thinking like, well, that's what's gonna happen to me. You know? So it's easy for me to be like, oh, sixty two sixty two like in my mind. I only have till sixty two and that is really like not a lot of time. And so even though I don't wanna believe that or predict that for myself, it comes in, and then I have to say, okay, well, what if it was true? Like, what would you do? And I'm like, let's go. Let's go do some things that make me feel alive. And so I actually use that as a barometer a lot. It's like, what makes me feel really alive? And it's not comfort food and TV and social media scrolling and all the things I do all the time. I'm not judging any of these things, but those don't make me feel really live. Those things make me feel more numb. What makes me feel more alive is truly connecting with people, is taking risks, is doing something new, getting out of my comfort zone. So when I say I really want to be alive, I use that as a measure. What makes me feel alive? Oh, like, learning a different style of dance, even though I'm not good at dancing. Like, I just I'm like, that's so fun. So I try to do those things and I my kids are now at the age where they're graduating from high school and heading to college, etcetera. And I think, like, that even more so, that's a different kind of grief. And in of itself, like, identity and family dynamic shift, and and whatnot. But I think about that a lot too. I'm like, okay, they're going out to have their adventure and I can't, too. Like, this this is We're getting some time back in our lives. And so I don't wanna just waste that away. I wanna I wanna do things that yeah. That feel like yeah. I don't wanna just settle and, like, move into, like, a comfort zone. I want to move into, like, something new and and have an adventure.

Victoria: And be reminded that you are alive. Right?

Katie: Yes. Exactly. Exactly.

Victoria: I lost my dad. He was forty four. Oh. And so that's one thing people don't really talk about, right, is you wait for that year to come around. Like, oh, I've made it past. My dad's age now. Okay. Well, I can cross that off the list, you know. So that's something people who really don't talk about. Mhmm. One thing I'm curious too, because I've I've had this awareness just for myself in the last year or so is that I could never I never had my dad's birthday on my calendar, but I always had the day he died. Wow. Were you the same? Or I, you know, like, I could never celebrate the day of his birth. Right? Which seems really no. I I I was eight when he passed. So I didn't have a very long time. Right? But I don't even remember I think there's a picture of it was his birthday one time, but Yeah. I just think people don't really talk about that part of

Katie: Yeah. Dates. I can see as an eight year old in only having experienced him for those years how his death date would be way more profound for you than his birthday. Just thinking about that. Like, I'm thinking, yeah, I can't imagine as an eight year old processing that. And then every year, like, feeling the impact of that in such a profound way, it doesn't surprise me that that would be your experience. I think that for me, my mom was like, such a birthday accelerator. And I'm like such a birthday. I it's like I'm a little spazzy about it. I just love celebrating birthdays.
I tease about having a birthday month, and I'm a little bit of a diva about it, and I love celebrating my kids' birthdays. I've created little monsters with them about birthdays. So I think because of that, it's easy for me to, like, gravitate towards my mom's birthday and want to do things for her then. There was a couple a year in there where I was, like, oh, like, her day of death, like, pass without me even noticing. And I was like, oh, weird. Like, I almost felt bad for not thinking about it. But I was like, well, it's fine. You know, like, that's Anyway, Yeah. I I do think that it's something I thought about as far as, like, the catching up with your parents' age. My dad lost his father when he was twenty one. So my dad was twenty one when his dad died. And he I definitely watched him go, oh, I'm getting to the age. I can't remember how old his dad was, but he he definitely had that in his mind. And I watched him contemplate that. And then, for me, it was just a really profound reality of, like, oh, okay. Like, oh, no. My mom my mom, you know, started her decline in her fifties. That's not good. And then she died when she was sixty eight, diagnosed when she was sixty two. So I'm like, that's not good. But even I don't know. I just think it's it's kind of I don't know how it feels for you, but, like, I almost feel like watching someone die is a little bit like experiencing a car accident and how that, like, just like imprints on your body, like, imprints in your memory and in your DNA away or something. This is all science based. But, like, I think, like, the way you viscerally feel a car wreck, a car wreck, even when you, like sometimes even just say car wreck, like, we can put ourselves back in that space and time so quickly. I think that watching someone's decline and death it's not a shocking, but if you are able if you are able to see someone's processor decline there's a knowing that happens that you can't know any other way.

Victoria: Has it made you paranoid about your own health?

Katie: So Yes. So part of my journey, especially in in my film making career at this point, is to raise awareness around FTD, caregiving, like this whole thing. But one of the things I realized in in the moment when we got mom's diagnosis of FTD, I just heard dementia. And I I heard dementia and I was like, okay, it's some type of dementia and it's in her frontal temporal lobes. So those lobes are like, this part of us and And I kind of I'm I I think that I was in so much crisis that I couldn't even tolerate researching and finding more information. It felt like it would really stress me out even more. It was more like a survival survival. Since then, lost my mom in twenty sixteen. I made my first film in twenty twenty, which was also about dementia, like those early signs of dementia. And in that process, like, got connected with FTD community and more people in this world and started learning more just in my own journey in healing and stuff. And one of the things I learned was that FTD can be genetic. There can be like a genetic strain, like ALS or Huntington's or one of those things. So that doesn't feel really good in a child's mind of someone with dementia or with FTD. But so one so I realized there's a genetic component and I still was, like, okay, but I can, like, deny this away. Jeff can make sure, you know, oh, well, mom had the car wreck and all these other things, so it's probably related to that and not really related to any kind of genetics.
But then a number of years ago, her younger brother got diagnosed with a TD. So that was like a a heart soft for me. And there is testing available, which I could partake in. I don't know if we have. I don't know. I haven't done the research on how that works or what we need to be able to find out. And it is something I want to explore just to even contribute to research. Even if I don't find out whether I have it or not, it would contribute to the research of FTD, which is important to me. But all of that to say is I'm on this journey. I'm making my first feature film.
It is to raise awareness on caregiving and dementia's in general, but specifically diagnosis with FTD. And as I'm writing the film, I'm, like, preparing, I just feel like there's this, like, fear monster over my shoulder, like, you have it. You probably have it. Every time I stumble on my words or, like, you know, my handwriting gets wonky or whatever I think, oh my god. Like, this is early signs.
I can probably have it. So that fear is palpable. Like, it's in my life. It's present. It's attached to the grief. It's attached to the work that I'm doing currently in my life. I was working and moving through it just feeling like, you know, it's over there. I'm like, just wanting to shoe it away, like go away, go away. And then and then I stop for a second and I think I'm like, okay, instead of trying to ignore this and act as if it's not here with me, what if I face it. And so I had this moment where I thought, I need to just turn around and look at in the face. And so for me, that means instead of, like, being afraid of it. Why don't I just embrace it as if it is? And, you know, fear is just our imagination, and we can use it for our good, and we can use it for our demise. And I I feel like For me, this is how it sounded. Okay. Instead of like always being afraid every time little clubs happen or whatever, I'm gonna say, what if I knew for sure? That I had FTD. What if I knew for sure that I am gonna have this thing, it's coming, this is the way I'm gonna this is the way my life is gonna end? What would you do? And asking myself that just gives so much clarity because I realize even if I knew I had it, I would have to move into acceptance just like we have to with our grief at some point. Why not do it now? And think about this like if I had FTD, I would live my life as fully as possible. I would love my family, my friends, I would try to say present with them, I would try to pursue the healthiest life that I could. You know, obviously, like, we're all gonna sit on the couch and eat a bag of chips or whatever, but it's like I would choose healthy food, I would choose outdoor time, I would choose friend time, being present with people, And the other really point of clarity for me was and I would make this movie. And this movie would be like my contribution. And so asking that question and facing that beer monster dead on was such a moment of clarity for me in that I know I'm doing what I want to be doing with my life. I'm being very intentional. And now this movie is not just a good idea or something really fun and cool that I get to try to do, but it now is my mission. And the greatest part about that is I think one thousand percent I'm going to make this movie and it's going to impact people in these spaces, no matter what. Like, no matter what. My hope is that it's gonna just soar to the to outer space with success. And My dream is that it'll be my first of many movies that I have all these other movies that I get to make. I have some really amazing stories already in my mind that I that I cannot wait to get on paper and then on the camera and etcetera. But no matter what, I'm gonna make this one. And if I got FCD and that was the only movie I got to make, so be it.
Like, this is a great one to choose. And probably, I won't die that way and something else will happen and I'll get to make a whole other movies, but it just gave me so much peace just to, like, assume that it was that it was rather than fear that it might be. And that peace allowed me to have clarity with knowing that I'm doing what I wanna be doing with my time. In my life. So that that question is so huge for me of, like, what if I got it? And and answering that straight on was really helpful.

Victoria: It's a powerful reframe. Mhmm. Then there's probably a camp of people, like, no. You're like, manifesting it.

Katie: I know. I know. People are like, don't say that, but I I think I agree. I I do I do agree, like, that can, like, you know, the way we imagine and spend our time and our energy in our minds thinking is is impactful to our lives, but I also have to be compassionate towards myself and be like, of course, you're afraid of this. Like, it was the most traumatizing thing you ever been through.
So, like, we can't we can't have these fears, have this grief, and then also make ourselves feel terrible for being afraid of it, you know, with the manifestation camp. I mean, I love manifesting things and, like, spending my energy for good, but I also have to be honest about what I'm

Victoria: And who's the thing about that too? As I was thinking about, and as I said that, the other aspect of it, Elo, is yes, there might be people who think you're manifesting it, but it's not like you're dwelling on the fact that I'm I have this. It's You're dwelling on the fact that if this is a possibility, I'm going to take action. So it's almost like it's you reverse engineering it and your focus isn't on the dwelling Yeah. That this is, oh my gosh, this is gonna happen to me and it's oh my gosh.
If this were true, It's propelling you to take action. Yeah. Inspired action.

Katie: Right? Thank you.

Victoria: How has it changed? Has this movie changed the Like, do you have support from your family? Has this whole experience brought you closer with your siblings? Yes. Absolutely.
Shifted.

Katie: It's been phenomenal. So here's where we are right now at the recording time of this podcast. We have I've spent, like, years writing this script. I've spent the full last year fundraising and growing support for the film where fiscally sponsored and under a nonprofit. For our filmmaking, which is just such a huge it's something I'm really thankful and proud of. The support has been phenomenal. And when I start thinking about it, I like it emotional. I have so much gratitude I'm doing something that really scares me. Like, this film feels like a really big deal. It's it's a big endeavor to do what I'm trying to do with, like, I'm acting and directing and producing the same. And I know it's like taking a big old bite out of the film making world. But from the get go, the amount of support in people that have rallied to see this film come to fruition has has truly been phenomenal. And you asked about my siblings. And one of one of the ideas I had in this fundraising journey, and I think of it as more than fundraising. It's not just getting money for film. It's also growing an audience and growing a community around this. That really what my hope is is the more people that follow along and join us as we're creating this thing that then we'll get to, like, launch screenings and theaters around the country and, like, people will be able to come out and watch. But one of my ideas was what if we what if we did some happy hours and different places that I've lived and, like, have people host parties and we can share about the movie and and gather our community. And of course, one of those people was my sister in Georgia, and I was like, hey, what do you think about hosting one of these? And she's so good at hosting parties. She's amazing. She's like, I'm in. Let's go. Let's do this. And then my brother has a band that he plays in called holy smokes.
And they do cover music and their band donated their time and we had this big old party and it was just such a meaningful event to join with my brother and sister and feel so supported about us taking this journey and, like, them supporting just the creating of wake up Maggie was just phenomenal. But, you know, it's so touching. Like, I have people who have donated, like, ten dollars and people who have donated, like, thirty five thousand dollars. So it's, to me, money is energy and time. And it's all, like, coming from the same bucket. And so I don't get super fixated on the money. I really love to fixate on the energy and, like, what what are we growing and what are we building and what are we doing? It's more of a movement. So I have been absolutely floored by the by the people that come along and say, okay, let's get this movie made. Like, how can I support you?
What are we gonna do? Let's go. And I'm just gonna say, like, it's so many women that have done that for me, and I'm like, women are so powerful. It's just amazing. It's not all women, but, like, it's just Yeah. I think I think this is a film. I call it a coming of middle aged film, which I personally love because we have so many coming of age films of, like, you know, the transition of teenagers and I love that genre, but I feel like there's a different there's a different transition, a different like a second puberty of sorts that happen in our midlife, and I think that if we let it affect us, it can change us for so much good and so much of it is centered on grief. So much of it is I think sometimes people in their twenties have gone through midlife because they face something deep and profound. You in their life and it's like a grief and impacts them to the point where they say, I Okay. I'm going to like have this perspective on life and and what I wanna do and know how I wanna live. That's what midlife is to me. It's this unraveling of pretense. And and, like, coming into our own and, like, feeling more solid in in our life and our humanity. And that's something huge to celebrate. And I think getting to see it on the big screen is gonna be a really profound experience for all of us, and I can't wait for everyone to see it.

Victoria: Well, I definitely will put the link in the show notes.

Katie: Please Yeah.

Victoria: To your page for people to support your mission and your cause. Thank how would you describe the Katie you were before your mother's own list and the Katie sitting before me now?

Katie: Yeah. That's great question. So much of my journey definitely is integral with acting. So I started acting after I lost my mom. And I would say before I lost my mom, I was a heavy people pleaser. Lots of personal denial, lots of ignoring of my own needs, ignoring of myself, body awareness. Like, all that was just, like, not really a part of my life. And then the healing journey along walking parallel and my healing journey with grief and then also deepening acting, I feel like my journey with acting has helped me become more fully human. It's helped me to acknowledge and deal with like emotions that I often would wanna pretend don't exist inside me. It's helped me to connect my mind with my body and my nervous system in a deep way, like, oh, I actually need to notice when I'm like, I can look really calm on the outside. I can tend to be, like, a more people often say, oh, you're so quiet and soothing. And I'm like, funny. Because, you know you know if you're feeling like this spending or churning inside

Victoria: like a horse and a horse race.

Katie: Right? It's just this like, yes, you feel that inside and and I think I think my journey with acting has helped me to say, oh, that that's happening right now. And like, what can I do to support myself? And what can I do to support my nervous system? And how can I experience what I'm experiencing?
But also like not let it stop me in my tracks. So it's been so profound. It's been so profound. I think like coming to acceptance with my mom's disease, coming to acceptance with my mom's death, and then moving into a life that I I just want to be so intentional and present and just filled with gratitude. It's just it's it's like, yeah, it does feel like an unraveling. I think, Berné Brown has a quote that I love that she talks about, midlife isn't a crisis because a crisis is one event. Midlife is more of an unraveling. And I think we think of the word, like, being unraveled as, like, a negative thing, like, someone's frazzled or something. But but I feel it as, like, peeling back for me, it's an appealing back of the layers that no longer serve me, the layers that I hid behind and and, you know, coming into my own space and in place in this world and, like, owning who I am without trying to constantly please and put everyone else first and like their opinions first. So I think it's also been a journey of exposing myself in that way too of, like, people pleasers can often blend in so well. And then, acting and filmmaking is like one of the most public art forms you could possibly choose. And so it does a number on me because I think, oh, no, everyone's blah blah blah blah blah. And I'm like, no, they're not. They're completely preoccupied with themselves, but I think just just doing that type of exposure helps me, like, care less. About my imagination towards what other people might be thinking. So, yeah, so I feel like I am obviously, I think we have these core parts of us that are always true to who we are, but I think What's happened is for me in this process of losing mom and moving forward with my life is that I'm more raw and more real and less hidden in it.

Victoria: I think we almost get as we allow ourselves to be cracked open and

Katie: Yeah.

Victoria: Expose ourselves and do things out of out of our comfort zones and challenge ourselves. We become more like children. Right? One of women and children and we get back to I think that child, like, essence within us that we stuffed away and put away because it's not acceptable

Katie: Yeah.

Victoria: To have you and and creative expression is is fufu and it's for it's like a luxury. And I what I've learned in all of these interviews I've done in over four years and my own experience is that when you lean into creative expression, and out of your comfort zone, doing things out of your comfort zone. That's when you really discover who you were always meant to be, I think.

Katie: Yes. I'd love that. Yeah. It really is coming into a sense of play. And you can't you can't play unless you're, like, really present. Mhmm. And our adult minds love to, like, fixate on the past or the future and not, like, right now. So I love that you're saying that. Yeah.

Victoria: Well, in using the past as your creative fuel. Right? So it is looking at it. Mhmm. You're not having to look at it. It's not a stuffing and a tucking away just like and that's what we do with our grief, and I think that's what so many griefers find themselves stuck in mid life is that they haven't allowed themselves to fully express themselves. Yeah.

Katie: No, I totally get what you're saying about looking at it. I think that writing Even though I'm writing fiction and I'm writing the script and the story that's not it's not my story, but it is so much of my story that it has been a really healing journey of of It's like exploring the past and what happened, but also in a playful way of storytelling. Yeah.

Victoria: Mhmm. Is there anything else that you would like to share that you didn't feel you got to?

Katie: That's a nice question. I feel really good. I I just yeah. I I love what you're doing in the world and and that you're helping grivers feel heard and seen and understood. And I think it's such an important thing for all of us because so often grief hits and we've not ever thought about it until we're in it. I think if I could just leave people with anything. It's just the imagery of the sun shining above the clouds. Think if if nothing else, if you just close your eyes and know that what you feel isn't the only truth of existence right now. It's okay to feel it and it's and it's also really helpful to know that there's, like, light and warmth above that you will access.

Victoria: Beautiful words. Thank you. Where can people reach you if they would like to learn more about you? Wake up Maggie, your work, all of them? Where can they connect with you?

Katie: Thank you. For asking that, I try to make it as easy as possible. All of my social media is Katie Prentiss, so pretty easy to find. My website is kady prentiss dot com. And wake up Maggie is all under wake up Maggie movie.
Wake up maggie movie dot com and on Facebook and Instagram is wake up maggie movie. So we'd love for you to follow along and and be a part of our journey. So try to share it all.

Victoria: Do you have a goal date?

Katie: Yes. We're filming in February of twenty twenty five. Yeah. Oh, awesome. Yes.
Yes. So we're right in the middle of working so hard to get everything ready for filming. So we're in pre production production right now. And then we'll shoot for about three weeks in February, and then we'll be in postproduction, which is all the editing and sound and all the all the design work that happens on the backside of of shooting the film. So if I don't know exactly when we'll be released, but this is why it's so good for you to follow us on social media or come to our website.
We even have an email list you can sign up for. And we'll keep you posted. That way, we really love for people to join us and be a part of it. So then when we do screen in theaters, hopefully we can have everyone come out.

Victoria: I'm just curious. Do you have, like, are you, like, one of those people with numbers. Like, numbers are important. Or do you do you have, like, a specific date? Like, you know, your mom's birthday maybe

Katie: Oh.

Victoria: Something like that where you plan to even if it's done, you're not gonna launch until

Katie: Oh, I love that. I haven't thought about that with mom. I will say I lost mom. We lost her on February twelfth, twenty sixteen, and we're shooting in February, which is interesting to me. And then I definitely tossed her birth date.
Into the film as a birth date of one of the characters. Obviously, it's called Waco Maggi after her, but I haven't thought about the release date. That would be really special if it was on some sort of special date, but I haven't thought about that.

Victoria: Okay. I'm just curious.

Katie: Yeah.

Victoria: It'll be really special. I'm sure. Thank you. Amazing way to honor your mom and her memory. Filming in February.

Katie: So Yeah. Beautiful.

Victoria: How that worked out? Yeah.

Katie: Yes. I agree.

Victoria: Alright. Well, thank you so much for your time today. I appreciate you sharing your story and and your mission. And being a part of my mission to talk about grief like we talk about the weather and and it's, you know, it's not all doom and gloom. Right?

Katie: Right. Exactly. Yeah. No. Thank you so much for having me.
It's really no longer to be with you. And all of your listeners and just to be able to share my stories a gift. So thank you.

Victoria: Thank you. And remember, when you unleash your heart, you unleash your life. Much love.